It's almost impossible to quantify the actual level of casual cruelty directed toward people who are "different" and evaluated subconsciously as "weak" by others. People who are different and evaluated as "strong," of course, don't get nearly the amount of negative input. For example, Sir Richard Branson the Virgin CEO, is very open about his learning disabilities. He's made enough of a mark on the world that he certainly wouldn't experience the type of casual mockery a young, timid student might upon admitting he was having trouble reading -- or heaven forbid -- couldn't read. And, even better -- he employs many people, he sets an example, he helps others, and he has a vision for the world. That's "different" and "better." Which still gets made fun of sometimes, but nobody like Richard Branson would care too much about that type of ridicule. Even somebody like me would agree with him on that.
Different, better, helping the world - but you STILL don't look quite right? Or, heaven forbid, you are disabled, especially in some way that prevents you from walking, and perhaps - even from speaking intelligibly or perhaps even from moving your arms or legs to any effect. Well, gee -- like whom? Oh, yes - Stephen Hawking.
My daughter told a joke about a mad driver trying to hit Stephen Hawking in his wheelchair the other day. She imitated his speech, and after a bit, I realized - she didn't actually know who Stephen Hawking really was. She thought he was a character on the Simpsons! (see picture at left).
I told her who he was, briefly, shared the importance of his ideas. She wanted to know why he was in a wheelchair, and I said I thought it was Amylotrophic Lateral Sclerosis - which is also known as "Lou Gehrig's Disease" because the baseball great was stricken with it, which allowed people to understand the disease better and perhaps, acquire some empathy. Empathy which is today nearly gone considering the Simpson's episode and the incredible proliferation of Stephen Hawking jokes!
In my last year of graduate school at Chapman, I became much closer to one of my fellow students, Julie Jones. Julie was disabled similarly to Stephen Hawking (though not from the same cause, and had been wheelchair-bound since she was very young -- after breaking her leg at a later date, she was also bedridden for six months). Julie was one of the few writers there to complete a novel-length manuscript, a wonderful story for young adults. That's right -- it was hard for Julie to sit up, she ran out of strength many days, and she had to have breathing assistance as well as a motorized wheelchair -- and she did far more writing, and better writing, than most of the "able bodied" students of theoretically "sound mind."
One day I was in an interesting class -- the Oscar Wilde class with the absolutely most spectacularly best Ph.D. instructor of graduate English ever, Myron Yeager -- and sitting beside Julie. She asked me to help her turn the pages of the thick, unwieldy Oscar Wilde book. I proceeded to babble about all I was writing and publishing. Babble babble babble. Julie quietly listened and nodded and turned the pages of the book.
And in mid-babble, it dawned on me. It's so easy for you. You never gave walking, hiking, doing anything you wanted a moment's thought. Not a second of any type of reflection. You can stay up all night writing. You can cram your body into an uncomfortable chair and read curled up like a turtle in the dark, and you've never had more than a moment's worry about how you'd do -- ANYTHING.
Why, I asked myself -- why would God have put such terrible things upon Julie, who was one of the kindest, best-hearted, brightest people I knew? She surely did not deserve this. Why not put those things on somebody . . . oh . . . like Scott Peterson instead?
Julie wanted to know why I'd quit babbling. I told her, "Tell me about what you are working on now?" and she did - before class got started.
She didn't know this story until after "To Kiss the Star" was published, and why I really dedicated the story to her. Because I thought about "Why?" and the story was the answer. I would like to say it was one of those that wrote themselves. Well, nearly so. I was able to go into the main character Mel's head easily. And living in that space was one of the most difficult two-week periods of my life.
In the pain I've experienced since, I still do not think any of it could compare to the feelings of somebody trapped in a balky, resistant body from childhood or even birth -- yet with, as Rob Sawyer said about Mel, "a soaring mind." I saw my own face like Mel's when she put the glasses on and saw what had happened to her face while she'd been blind.
And for anyone who feels that way -- I don't need to add what abuse, ridicule and denigration add to it. The courage to "soar above" that is perhaps, the greatest courage I know of in the human condition.